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Working psychologically with people with motor neurone disease and Huntington’s disease: The evidence and the clinical experience

21 April 2021 11:00 am - 12:30 pm
See Pricing Tab for further details.
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This webinar will outline the findings from the recently published evidence-based BPS guidance on working psychologically with individuals with motor neurone disease and Huntington’s disease.

Firstly the psychological difficulties faced by people with these conditions will be outlined and then we set out the evidence for what current psychological approaches work.

The challenges of providing therapy in the absence of evidence for specific difficulties will also be discussed as will the challenges of access to services.

The first part of the session will be used for information giving but time will also be set aside for discussion (and debate!) and for those with other experiences to share their clinical expertise.

Please note: this webinar will not be recorded.

To avoid disappointment please only book a place if you are able to attend the live webinar.

Learning outcomes

  • By the end of the webinar, attendees will:
  • Be aware of the psychological issues commonly experienced by people with motor neurone disease and Huntington’s disease
  • Be aware of the assessment challenges
  • Be aware of issues to consider in formulation
  • Be aware of the evidence suggesting what therapies can be effective
  • Be aware of the service challenges in providing mental health support
  • Have had the opportunity to contribute their own experience and expertise

Speakers - 

Jane Simpson is Professor of the Psychology of Neurodegenerative Conditions at Lancaster University. She co-leads the Psychological Interventions and Approaches group of the European Huntington Disease Association. As an academic and clinical psychologist, she is a co-author of the recently published BPS guidance in this area and works closely with a number of neurological charities to highlight the challenges in providing mental health services for individuals with these conditions.

Fiona Eccles trained as a clinical psychologist and now works as a lecturer at Lancaster University where the focus of her research is on the wellbeing of people with neurodegenerative conditions such as Parkinson’s disease and Huntington’s disease. She is co-author of recently published BPS guidance in this area.

Dr Nicolò Zarotti is an academic psychologist with a particular research interest around psychological approaches to motor neurodegenerative diseases such as Huntington’s disease, Parkinson’s, motor neurone disease, and multiple sclerosis. He is co-author of the first UK national guidance on psychological interventions with individuals with these conditions. He is also currently training in clinical psychology at the University of East Anglia.

Dr Maria Dale is a clinical psychologist who specialises in Huntington’s disease (HD). She works in a specialist HD service in Leicestershire that covers both an inpatient service for people with HD and a community multi-disciplinary team working with HD families across all stages of the disease. Maria co-chairs the European HD Network Psychological Interventions and Approaches Working Group. She has published a number of studies relating to the psychological aspects of HD.

Registration now open.


FPOP & DON Members


If you are an FPOP Member but the discount isn't automatically applied please enter the code COMP in the promotional code box on the basket page then click 'update'

BPS Members £48.50
Non-Members £80.00

All rates listed include VAT.

The login details for this conference will be emailed to all registered attendees the day before the event.

Please note, this webinar will not be recorded. To avoid disappointment please only book a place if you are able to attend the live webinar.


Have a query?

Contact [email protected]

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